Time for a blog update / blog face lift! (Hope you like the new look)
I know it is time and it has been to long.... So here is our update!
Last week; we visited Children's Hospital. Just a casual visit - or as casual as it can be when just the act of walking through the doors is some what difficult and a tangible reminder of what time and emotion we have had there.
Big headline of the visit MASON IS THRIVING!
I feel so blessed to have been given this child to nurture, given the opportunity to watch him grow, learn and become a person of his own. (He has without a doubt changed me)
Each day is a day for giving thanks; I'm reminded of that constantly, even as we settle into life beyond his surgeries. I am Grateful for his life, grateful for normalcy, grateful for it all...
I've gotten to a place where I imagine "normal" parents have been all along - routine, love, kisses, discipline, more routine. The "unsettled" fear of the past few years feels, well, in the past... (That is a blessing in itself)
This next year will bring us to Mason's 3rd and final surgery and as we approach that time we try and stay focused on the present.
We take day each day as it comes, constantly coping with the lingering anxiety of being heart parents. A club that no one wants to join or be apart of.
The decision was made a long time ago that if Greg and I would survive this trial / test / fight we would need to use the filter of "glass half full". As we look forward to Mason's future; we have hope and excitement.I wish as I write this I could say that choosing to live by this is as easy as writing it in this blog, but the reality is we (mostly me) have good days and bad days.
I have always believed that the Lord does not give any individual more than they can bare and for that I feel somewhat honored to carry this burden, this has been a heavy burden to carry and will continue to be for the rest of my life.
Time for our nightly bedtime routines...teeth brushing, bed time stories, snuggling, saying I love yous and kisses.
Precious time's that pass to quickly!
Be blessed in health...
Kelsey
I thought it was my turn to be the spokesperson for the family :)
I know it is time and it has been to long.... So here is our update!
Last week; we visited Children's Hospital. Just a casual visit - or as casual as it can be when just the act of walking through the doors is some what difficult and a tangible reminder of what time and emotion we have had there.
Big headline of the visit MASON IS THRIVING!
I feel so blessed to have been given this child to nurture, given the opportunity to watch him grow, learn and become a person of his own. (He has without a doubt changed me)
Each day is a day for giving thanks; I'm reminded of that constantly, even as we settle into life beyond his surgeries. I am Grateful for his life, grateful for normalcy, grateful for it all...
I've gotten to a place where I imagine "normal" parents have been all along - routine, love, kisses, discipline, more routine. The "unsettled" fear of the past few years feels, well, in the past... (That is a blessing in itself)
This next year will bring us to Mason's 3rd and final surgery and as we approach that time we try and stay focused on the present.
We take day each day as it comes, constantly coping with the lingering anxiety of being heart parents. A club that no one wants to join or be apart of.
The decision was made a long time ago that if Greg and I would survive this trial / test / fight we would need to use the filter of "glass half full". As we look forward to Mason's future; we have hope and excitement.I wish as I write this I could say that choosing to live by this is as easy as writing it in this blog, but the reality is we (mostly me) have good days and bad days.
I have always believed that the Lord does not give any individual more than they can bare and for that I feel somewhat honored to carry this burden, this has been a heavy burden to carry and will continue to be for the rest of my life.
Time for our nightly bedtime routines...teeth brushing, bed time stories, snuggling, saying I love yous and kisses.
Precious time's that pass to quickly!
Be blessed in health...
Kelsey
I thought it was my turn to be the spokesperson for the family :)
Comments
Katie (Maddie's mom, HRHS)