Skip to main content

Like birds of a feather we flock together..


I am a HEART MOM
Tough
Blessed
1 in 100
Inspiring
Pushed to the limit
Prepared
Knowledgeable
Compassionate
Brave
Special
Tired
Grateful
On an Amazing Journey
Germaphobic
Fiercely Determined
Selfless
Aware of what REALLY matter
Amazing
Hopeful
Strong Beyond Measure
Courageous
Seeking Miracles
Sleep Deprived
An Ordinary Woman Caring for an EXTRAORDINARY CHILD
Living for the moment
Taking nothing for Granted
Doing what I think is Best for MY child
Loving
Willing to do whats required of me
a cheerleader
a Warrior
Worried
An Example
An advocate
in survival mode
 a student
Lucky
Pleading
Following my Instincts
Nervous
Stressed
STRONGER THAN I KNOW


THANK YOU KATIE FOR THE AMAZING COOKIES!

I have spent what feels like a lifetime getting to know other heart mothers "virtually". I do not always get the opportunity to meet them face to face but when I do it feels like we have been friends forever, almost like I just saw them the previous week. 

 This month I had the opportunity to enjoy the most amazing lunch with some other heart mothers. 
We even had a few crazy mom's drive hours to join us (I say crazy with LOVE).
For me this just shows how special our heart mom get together are, we after all know intimately the journey each is on even though we all are at different stages in the journey. 



 These women (above) all have children like Mason. Single ventricle kids with their own unique, beautiful and complex hearts. 
This photo is a real life example of the scary truth we all face... Statistically one of our children will not make it to their first birthday. Sadly two days after this lunch one of the moms lost their baby after a courageous fight.  

 Raising a child with a complex heart is difficult, scary, and hard.
Losing a child to to a CHD is earth shattering. 

Labels:

Comments

Post a Comment

Popular posts from this blog

Making Progress

Greetings from Seattle Children's, We are happy to inform everyone that Mason is doing very well and has been moved out of ICU and over to, "the floor." This is a good sign that he is recovering on schedule and should be just a few days away from going home. He orginally had three or four I.V.'s in and is now down to one, which included the removal of the main one in his neck. Kelsey and I were looking forward to that one being removed. He still has two drainage tubes in his chest which we would like to have had out already but the Dr.'s are being cautious because he drained a little more blood than normal his first day after surgery. The plan is to have those taken out tomorrow which will make him feel even better. He is waking up on occasion but isn't quite up for smiling yet...understandably. Kelsey and I just want to hold him and make him feel better but unfortunately he seems to become more uncomfortable when we do, so we try not to be too selfi...
Post a Comment
Read more

Welcome to HOLLAND

It was time to start collecting all of the information needed to schedule and prepare for Mason’s Fontan Surgery. So last Friday – Mason went in for his Cardiac Catheterization. (Defined below) Cardiac Catheterization (Heart Cath) is the insertation of a catheter into a chamber or Vessel of the heart. This is done for both investigational and intervention purposes. Subsets of this technique are mainly coronary catheterization, involving the catheterization of coronary arteries, and catheterization of cardiac cambers and valves. (Did you get all of that?!?!?) When we arrived at Seattle Children’s Hospital– Greg was busy checking us in and I sat with Mason in the Surgery Center waiting area. Mason and I talked, I kissed him, I played with him… I pulled out all the stops so that he would not remember that he hadn’t eaten in 12 hours and that he was at his least favorite place – Children’s Hospital. During some point of my “operation distract Mason” I noticed you staring at us from acr...
1 comment
Read more

To our moms (plural)

To my Mom… You might not always feel needed but you are. You raised two strong women. Who work hard, and try to play harder (at least one of us, I will let the readers decide who I am referring to).   You provided us with a childhood I dream to provide my kids with.   You showed us through experiences a taste of what this life has to offer. You are an amazing mom. AND an exceptional Nana.   To my Step-Mom… I don’t know this to be factual but I imagine that being a Step – Mom is somewhat harder… At least maybe to the two young girls below…. Joyce, you showed us a different side to unconditional love. You choose to stay and stand your ground. Even when you didn’t have to. Even when we fought back. The two women you helped raised are thankful for that! To my Mother in Law. You raised a man who is the best person I know.   (Side note. Mason just a...
Post a Comment
Read more