Skip to main content
Don’t have a lot to report…
Mason is feeling so much better and he is the one requesting to go for walks vs. us asking / encouraging him.
We have been on about 6 journey’s throughout the halls today and he of course spends some time chatting up all the cute nurses  He is such a boy.

He has also been off Oxycodone for the past 24 hours and is only receiving Tylenol for pain… I cant wrap my mind around this… His open heart surgery was literally only one week ago today – and he still has chest tubes yet the Tylenol is working great and he is acting much more like himself.

His chest tube drainage is heading in the right direction. Yesterday his right tube put out 153cc’s and his left tube put out 80cc’s… Sounds like we are on track for today to be even less than yesterday.
This is still not low enough for them to even talk discharge but we are praying that this trend continues and we can have this conversation sooner rather than later… (Patience Kelsey)

Mason also had his IV taken out today. The port went bad and since he is doing so well and not requiring any IV fluids they decided to take it out all together. This is a first. Usually they require that all patients while admitted have a port (being used or not) and lastly they are not requiring him to be hooked up to machines all day. They plug him in every four hours for rounds / vital checks and then they let us unplug him so when he gets the urge we are free to roam (providing we don’t leave our floor) this isn’t the easiest task since one of of has to help him and the other has to carry his chest tube boxes but outside of that we are free… It is almost as if we are guests staying at a hotel. One that we would like to check out of soon but none the less we are trying to enjoy our stay given the circumstances.

Hope you are all having a FANTASTIC Tuesday!

Comments

Amy Bennett said…
Wow, that picture is SO great! He looks so good! Praying that dang chest tube drainage stops and SOON!!!
I have to say, each one of your last posts have made me smile and done *my* heart a world of good! I know you must be chomping at the bit to get home, but your positive attitude and seeing Mason look so pink and healthy gives me so much hope for Gracie's Fontan. Many hugs, I hope that drainage goes down soon!

Popular posts from this blog

Loaded Diaper?!?!?

Today's post title comes to you from the one and only Greg Garka... Thanks for the idea babe! As far as Mason is concernced today was another good day for our little man! We made our goal and got up and went on a total of three walks. The last walk of the night he spotted the “playroom” and was interested so we stopped and visited with our neighbors while he played. It was the highlight of the day. His appetite decreased today but that is to be expected since he hadn’t yet had a bowel movement (in 6 days)– however about 60 minutes ago things changed in that department and I am happy to report his bowels are working and back in action… During his echo he was again a crowd pleaser and was on his best behavior. The technician said that he was the best 3 year old she has done. It is so funny; he gets upset when something is about to happen and he doesn’t understand what. He tells us he is scared and then after we explain to him what they are going to do and that it won’t hurt –

Our Day at Children's

Hello all, Kelsey and I spent the morning at Children's Hopsital in Seattle today, what a place! They sure do a good job of trying to make the kids feel comfortable...part of me didn't even feel like I was at a hospital. We met with a Cardiologist, Dr. Vernon, and a Paranaetologist, Dr. Holmgren (yes, Mike Holmgren's daughter). Both of them were very nice and extremely informational. Dr. Vernon did confirm that Mason has HLHS and is a candidate for the Fontan Operations, which are the three stage surgeries he will have to go through to get his heart working as normal as possible. Kelsey and I have been talking about where we would want to do the surgeries in case we weren't comfortable with Seattle Children's. We knew going in that Children's in Seattle is one of the premeir hospitals in the country, but weren't sure how they were compared to other hospital's like University of Michigan with this particular heart disease. I'm glad to say that w

Wordy Wednesday or Wordless Wednesday????

The big question of the day should I be wordy or wordless on Wednesday? If I go WORDY a post might have quotes such as: - When you are through changing you are through - It takes both rain and shuneshine to make a rainbow - If a care is too small to be turned into a prayeer, it is too small to be made into a burden - We make our plans, but the Lord determines out steps. Proverbs 16:19 - The world at its worst needs a church at its best - The essence of generosity is self-sacrifice - Philanthrophy, like chartity must begin at home - A reject opportunity to give is a lost opportunity to recieve If I go WORDLESS I could share my life through photos... Message me, facebook me, call me, leave a comment or talk to me in person either way let me know your thoughts...