Monday, February 11, 2013

Like birds of a feather we flock together..


I am a HEART MOM
Tough
Blessed
1 in 100
Inspiring
Pushed to the limit
Prepared
Knowledgeable
Compassionate
Brave
Special
Tired
Grateful
On an Amazing Journey
Germaphobic
Fiercely Determined
Selfless
Aware of what REALLY matter
Amazing
Hopeful
Strong Beyond Measure
Courageous
Seeking Miracles
Sleep Deprived
An Ordinary Woman Caring for an EXTRAORDINARY CHILD
Living for the moment
Taking nothing for Granted
Doing what I think is Best for MY child
Loving
Willing to do whats required of me
a cheerleader
a Warrior
Worried
An Example
An advocate
in survival mode
 a student
Lucky
Pleading
Following my Instincts
Nervous
Stressed
STRONGER THAN I KNOW


THANK YOU KATIE FOR THE AMAZING COOKIES!

I have spent what feels like a lifetime getting to know other heart mothers "virtually". I do not always get the opportunity to meet them face to face but when I do it feels like we have been friends forever, almost like I just saw them the previous week. 

This month I had the opportunity to enjoy the most amazing lunch with some other heart mothers. 
We even had a few crazy mom's drive hours to join us (I say crazy with LOVE).
For me this just shows how special our heart mom get together are, we after all know intimately the journey each is on even though we all are at different stages in the journey. 



These women (above) all have children like Mason. Single ventricle kids with their own unique, beautiful and complex hearts. 
This photo is a real life example of the scary truth we all face... Statistically one of our children will not make it to their first birthday. Sadly two days after this lunch one of the moms lost their baby after a courageous fight.  

Raising a child with a complex heart is difficult, scary, and hard.
Losing a child to to a CHD is earth shattering. 


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