Like birds of a feather we flock together..

I am a HEART MOM

Tough

Blessed

1 in 100

Inspiring

Pushed to the limit

Prepared

Knowledgeable

Compassionate

Brave

Special

Tired

Grateful

On an Amazing Journey

Germaphobic

Fiercely Determined

Selfless

Aware of what REALLY matter

Amazing

Hopeful

Strong Beyond Measure

Courageous

Seeking Miracles

Sleep Deprived

An Ordinary Woman Caring for an EXTRAORDINARY CHILD

Living for the moment

Taking nothing for Granted

Doing what I think is Best for MY child

Loving

Willing to do whats required of me

a cheerleader

a Warrior

Worried

An Example

An advocate

in survival mode

 a student

Lucky

Pleading

Following my Instincts

Nervous

Stressed

STRONGER THAN I KNOW

THANK YOU KATIE FOR THE AMAZING COOKIES!

I have spent what feels like a lifetime getting to know other heart mothers "virtually". I do not always get the opportunity to meet them face to face but when I do it feels like we have been friends forever, almost like I just saw them the previous week. 

This month I had the opportunity to enjoy the most amazing lunch with some other heart mothers. 
We even had a few crazy mom's drive hours to join us (I say crazy with LOVE).
For me this just shows how special our heart mom get together are, we after all know intimately the journey each is on even though we all are at different stages in the journey. 



These women (above) all have children like Mason. Single ventricle kids with their own unique, beautiful and complex hearts. 
This photo is a real life example of the scary truth we all face... Statistically one of our children will not make it to their first birthday. Sadly two days after this lunch one of the moms lost their baby after a courageous fight.  

Raising a child with a complex heart is difficult, scary, and hard.
Losing a child to to a CHD is earth shattering.