Skip to main content

WE ARE HOME!!!!


I had no idea that getting discharged from the hospital this time would come with such emotions. I couldn’t help but cry, cry and cry some more. Of course I was happy – I felt like the weight of the world suddenly was lifted off of my shoulders and for the first time in almost four years I could breathe a little easier. We made it – we beat the odds; with a healthy thriving little warrior.

I also felt a huge sense of sorrow for all of the parents who had to take this same walk with out their child. I couldn’t imagine bearing that cross and the day of our discharge – I thought of each family I had meet whose child hadn’t made it.

Discharge day was bittersweet and filled with emotions. We are SO VERY GRATEFUL for Seattle Children’s; the surgeons, the doctors, the nurses, all of the cardiac staff…Mason is alive because of them.
When Mason was first diagnosed we knew that the outcome could have been different; we knew what we were up against but believed with the team in Seattle – Mason had a fighting chance.
We will be eternally grateful for the entire team of people who helped give us the outcome we have today… A THRIVING LITTLE BOY; and we are especially thankful for his surgeon, Dr. McMullan. We are so thankful that years ago he chose this as his specialty, that he was given this incredible talent, a steady hand and the gift to mend broken hearts. He is an outstanding person and an incredible surgeon. We thank God everyday for him.

It is crazy because as parents you think that it is your job to teach your children… and it is. But the reality is that if you let them they teach you. Through Mason we have learned real strength, pure beauty, and how to fully rely on our faith. We have learned that your life should be counted by the people whose lives you touch, not by the number of days you live.

Discharge day we closed a HUGE chapter in our story. His heart journey is not over – it will never be; he will always be a boy living with ½ of a heart; the important part – HE IS LIVING!

Thank you for your prayers and support.


Comments

Kelsey, this is beautiful. I am crying too!! So glad you are home and starting a new chapter. Thank you for your words of encouragement. You are an amazing heart mama :)

Popular posts from this blog

10 Years....

Mason, It is amazing how time passes by in the blink of an eye after you have kids…. It seems like just yesterday, yet this week, 10 years have passed since our life was turned upside down. The day our world took a turn we never saw coming. Each year leading up to the anniversary, I get anxious, emotional, sad, scared, and angry. I WISH 10 years later I felt differently. But I don’t. It almost feels just as raw as the day we were told…. This year. I am consciously recognizing what it is… MONDAY FEBRUARY 11 th ,2008. We sat in a room where a Doctor carefully articulated and explained to us about your special heart. There is one detail about this day I have seemed to forget in time. That is the name of the doctor who told us about our fate…. I could describe to you in details about anything else you might want to know, who was there, what we were wearing, what the Doctor himself looked like and the conversation we had. Yet his name, which used to be

Loaded Diaper?!?!?

Today's post title comes to you from the one and only Greg Garka... Thanks for the idea babe! As far as Mason is concernced today was another good day for our little man! We made our goal and got up and went on a total of three walks. The last walk of the night he spotted the “playroom” and was interested so we stopped and visited with our neighbors while he played. It was the highlight of the day. His appetite decreased today but that is to be expected since he hadn’t yet had a bowel movement (in 6 days)– however about 60 minutes ago things changed in that department and I am happy to report his bowels are working and back in action… During his echo he was again a crowd pleaser and was on his best behavior. The technician said that he was the best 3 year old she has done. It is so funny; he gets upset when something is about to happen and he doesn’t understand what. He tells us he is scared and then after we explain to him what they are going to do and that it won’t hurt –

Our Day at Children's

Hello all, Kelsey and I spent the morning at Children's Hopsital in Seattle today, what a place! They sure do a good job of trying to make the kids feel comfortable...part of me didn't even feel like I was at a hospital. We met with a Cardiologist, Dr. Vernon, and a Paranaetologist, Dr. Holmgren (yes, Mike Holmgren's daughter). Both of them were very nice and extremely informational. Dr. Vernon did confirm that Mason has HLHS and is a candidate for the Fontan Operations, which are the three stage surgeries he will have to go through to get his heart working as normal as possible. Kelsey and I have been talking about where we would want to do the surgeries in case we weren't comfortable with Seattle Children's. We knew going in that Children's in Seattle is one of the premeir hospitals in the country, but weren't sure how they were compared to other hospital's like University of Michigan with this particular heart disease. I'm glad to say that w