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Thought that you might all like to see for yourself just how well Mason is doing. Here are a few photos from this week.

Mason holding his shot gun.

Mason and Mommy. This is where we spent most of our time while in ICU, in a chair sitting by his bed so he felt like we were able to hold him. Not the most comfortable of positions but anything to make Mason happy.

The window in our ICU room.

Our room. It is funny how in life a few things come back full circle and having this as our CICU room was one of those things. Before Mason was born and after he was diagnosed we were able to take a tour of the hospital. During the tour we were taken into this very room (with no patients) and we stood there and talked about what it was going to be like to have a room similar to this. After his Norwood surgery (his first surgery) this was also his room - When we walked in for the first time we saw our child with his chest open. Through out this journey we some how always seem to be in this room. So it was fitting that during his last CICU visit this is where we would have lived.

Hanging out in bed; watching a movie.

Mason's Room.

Getting ready to transfer. You can see his big boy bed in the hallway of the CICU.

Luckily Mason has a strong daddy. Greg was able to move him from his CICU bed to his big boy bed while the nurses helped to make sure all of his wires were moved with out any hiccups.

Down he goes... Transfer is completed without any hiccups.

Snuggled in and ready for the "parade"


All settled into our new room on the floor.

His monitor which reads all of his vitals.
Top Number (down):
- Heart Rate
- Blood Pressure
- Resperation
- O2 levels: 100%. someone pinch me. That is HUGE!

Over the past 4 years we have recieved the compliment - "Mason is lucky to have parents like the both of you" but really we have been lucky to have him. Everyday I am so thankful for Mason and his life. Through him, we have learned real strength, pure beauty, and how to fully rely on our faith. We have learned that your life should be counted by the people whose lives you touch, not by the number of days you live. He has change me, my husband, our relationship and all of our priorities.

He is our HERO!


Your Blogs made me want another Gregory Office Chairs – and I just got the West Elm Parsons in Polished White! I adore the Parsons Gregory Office Chairs – its super versatile and beautiful, especially in the white.
Thanks fr sharing with us.

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