Skip to main content

OUR 100TH POST!

Welcome to our 100th post.
It has been almost 4 years since we started this blog. To be honest I feel like it was just yesterday.

My husband came up with the idea to start a blog so we could share with everyone about Mason’s condition. When he was diagnosed (prenatally) it was a very difficult time for both of us so it became our way to communicate with everyone behind closed doors as we dealt with our new reality. This way everyone we cared about stayed informed without having to ask us a million questions. At that time we were to “fragile” to answer them so it really was the perfect solution.

Since then it has become much more than just a place to get information about Mason (although during a season of surgery that is mostly what it is). I have used this blog to share my insights, perceptive and in a way it helped me find my way back. I also pray that it has helped other families going through or starting to deal with their new reality of facing a CHD.

This surgery will close a HEAVY chapter in our lives but it isn’t the end of our journey. We will continue to live everyday with a child who has a single ventricle heart and this will come with obstacles that we will not be able to predict. We are a strong family – and together… Greg, Mason and I we have been through a lot and since this is out 100th post we wanted to share with you all just how strong our miracle man is…

Mason and his Daddy before his transport to Children's Hospital


Our first family photo. This was also the only time I was able to hold Mason before his surgery.


Mason after his Norwood Surgery. They left his chest open for 3 days to help with swelling. During this time you could actually see his beating heart.

Recovering after his chest was closed

Heading home for the first time

Happy at home

Our amazing little boy!

6 months old and ready for his Glenn Surgery

After Surgery

Still not feeling 100%

Feeling better at home

Happy FIRST Birthday!

LIVING LIFE

Last but not least - His Fontan Surgery

This is it. When we check out of here there will be NO scheduled surgeries.
Talk about a lot to be thankful for this Thanksgiving!!!

Comments

Christina said…
Its so funny...I can totally see Masons face and the looks only he pulls off...even in his newborn picture!
Esther said…
Hooray and amen! Praises be for Mason's strength and his faith based Mom and Dad. Such joy! The world is all the better for the family of Mason. We love you and smile as you work and live and play!
Unknown said…
Thanks for sharing this! I am so happy he is doing well and no surgeries schedule a true blessing.

Popular posts from this blog

Loaded Diaper?!?!?

Today's post title comes to you from the one and only Greg Garka... Thanks for the idea babe! As far as Mason is concernced today was another good day for our little man! We made our goal and got up and went on a total of three walks. The last walk of the night he spotted the “playroom” and was interested so we stopped and visited with our neighbors while he played. It was the highlight of the day. His appetite decreased today but that is to be expected since he hadn’t yet had a bowel movement (in 6 days)– however about 60 minutes ago things changed in that department and I am happy to report his bowels are working and back in action… During his echo he was again a crowd pleaser and was on his best behavior. The technician said that he was the best 3 year old she has done. It is so funny; he gets upset when something is about to happen and he doesn’t understand what. He tells us he is scared and then after we explain to him what they are going to do and that it won’t hurt –...

Our Day at Children's

Hello all, Kelsey and I spent the morning at Children's Hopsital in Seattle today, what a place! They sure do a good job of trying to make the kids feel comfortable...part of me didn't even feel like I was at a hospital. We met with a Cardiologist, Dr. Vernon, and a Paranaetologist, Dr. Holmgren (yes, Mike Holmgren's daughter). Both of them were very nice and extremely informational. Dr. Vernon did confirm that Mason has HLHS and is a candidate for the Fontan Operations, which are the three stage surgeries he will have to go through to get his heart working as normal as possible. Kelsey and I have been talking about where we would want to do the surgeries in case we weren't comfortable with Seattle Children's. We knew going in that Children's in Seattle is one of the premeir hospitals in the country, but weren't sure how they were compared to other hospital's like University of Michigan with this particular heart disease. I'm glad to say that w...

Wordy Wednesday or Wordless Wednesday????

The big question of the day should I be wordy or wordless on Wednesday? If I go WORDY a post might have quotes such as: - When you are through changing you are through - It takes both rain and shuneshine to make a rainbow - If a care is too small to be turned into a prayeer, it is too small to be made into a burden - We make our plans, but the Lord determines out steps. Proverbs 16:19 - The world at its worst needs a church at its best - The essence of generosity is self-sacrifice - Philanthrophy, like chartity must begin at home - A reject opportunity to give is a lost opportunity to recieve If I go WORDLESS I could share my life through photos... Message me, facebook me, call me, leave a comment or talk to me in person either way let me know your thoughts...